Chapter 26 - THE ASTHMA PROTOCOL
Sofia’s memorial fund eventually helped create a statewide custody-safe asthma protocol.
Not named after her.
The rule was simple:
When a child with documented respiratory disease moves between caregivers, rescue medication must travel with the child or a duplicate must be available.
Caregivers receive the same action plan.
Emergency care cannot be delayed for custody disputes.
Clinicians document missing medication as safeguarding concern when appropriate.
Technology partners created a neutral medical alert accessible to authorized caregivers.
No trust implications.
No family-control system.
Just medicine.
I helped review policy language once.
Then stepped back.
Parents, pediatricians, schools, custody lawyers, and disability advocates did the real work.
I refused to make myself expert because tragedy happened to me.
That humility took years.
The fund continued independently.
No annual gala.
May you like
No giant banner.
Sometimes good systems should not need a face.
